{"id":14677,"date":"2020-08-31T07:50:16","date_gmt":"2020-08-30T18:50:16","guid":{"rendered":"https:\/\/clladvocates.nz\/?p=14677"},"modified":"2020-08-31T17:59:33","modified_gmt":"2020-08-31T04:59:33","slug":"cll-advocates-nz-newsletter-issue-3","status":"publish","type":"post","link":"https:\/\/clladvocates.nz\/?p=14677","title":{"rendered":"CLL Advocates NZ Newsletter Issue 3"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row row_height_percent=&#8221;0&#8243; override_padding=&#8221;yes&#8221; h_padding=&#8221;2&#8243; top_padding=&#8221;3&#8243; bottom_padding=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; gutter_size=&#8221;3&#8243; column_width_percent=&#8221;100&#8243; shift_y=&#8221;0&#8243; z_index=&#8221;0&#8243;][vc_column column_width_percent=&#8221;100&#8243; gutter_size=&#8221;3&#8243; overlay_alpha=&#8221;50&#8243; shift_x=&#8221;0&#8243; shift_y=&#8221;0&#8243; shift_y_down=&#8221;0&#8243; z_index=&#8221;0&#8243; medium_width=&#8221;0&#8243; mobile_width=&#8221;0&#8243; width=&#8221;1\/1&#8243;][vc_custom_heading heading_semantic=&#8221;h1&#8243; text_size=&#8221;h1&#8243;]<\/p>\n<h1 class=\"title\">CLL Advocates NZ Newsletter Issue 3<\/h1>\n<p>[\/vc_custom_heading][vc_column_text]Greetings<\/p>\n<p>Research is a critical part of understanding diseases and their treatment. As set out in our Trust Deed, a key objective for CLL Advocates NZ is to \u2018promote and support NZ-based research on CLL, including the value and importance of developing and participating in clinical trials, and improving the quality of NZ data on CLL. In pursuit of this objective we\u2019re developing or supporting a number of initiatives:<\/p>\n<ul>\n<li><strong>Clinical trials in NZ<\/strong>. You can find information on our website about <a href=\"https:\/\/clladvocates.nz\/resources\/clinical-trials\/\">ClinTrial Refer New Zealand<\/a>. If you\u2019re interested in keeping up to date with trials of CLL treatments in NZ, you can <a href=\"https:\/\/download.cnet.com\/ClinTrial-Refer-NZ\/3000-2129_4-76324455.html\">download the free app<\/a> supported by HSANZ (Haematology Society of Australia and NZ) here. A number of New Zealanders have been enrolled in trials, often gaining access to unfunded medications, including \u201clast resort\u201d treatment options for advanced disease. There are numerous such trials actively recruiting as I write. One is Rob Weinkove\u2019s work at the Malaghan Institute in Wellington, on <a href=\"https:\/\/www.malaghan.org.nz\/cancer\/car-t-cell\/\">CAR &#8211; T cell therapy<\/a>. Trials of Zanubrutinib vs Ibrutinib \u00a0are also <a href=\"https:\/\/www.centerwatch.com\/clinical-trials\/listings\/216051\/a-study-of-zanubrutinib-bgb-3111-versus-ibrutinib-in-participants-with-relapsedrefractory-chronic-lymphocytic-leukemia\/?&amp;geo_lat=-36.7879229&amp;geo_lng=174.7688207&amp;radius=10\">recruiting<\/a> in New Zealand.<\/li>\n<li><strong>Second malignancies in CLL.<\/strong> We have proposed a summer studentship\/research grant in the Bay of Plenty on this topic. Second malignancies are one of the commonest causes of death in CLL. They include Richter\u2019s Syndrome and skin cancers, including melanoma. The project should start at the end of 2020. Having been a researcher in such studies myself, I know that patient involvement in research projects often significantly increases their own understanding of the disease, as they often involve frequent contact with health professionals and present good opportunities to talk about CLL with them.<\/li>\n<li><strong>A PhD research study on the use of cannabis as a medicine for cancer patients. <\/strong>Dr Karen Oldfield is a PhD candidate at Victoria University of Wellington and a Senior Clinical Research Fellow at the Medical Research Institute of New Zealand, who is looking at the use of cannabis as a medicine in NZ. She\u2019s inviting cancer patients to take part in a 5-10 minute online survey\u00a0about their thoughts on this topic. All information collected will be treated as confidential. This is a valuable research project, as well as a way of fostering links between CLL patients and NZ research groups, and I warmly encourage you to take part. If you\u2019re interested in helping with this research, go to this <a href=\"https:\/\/clladvocates.nz\/news-media\/medical-cannabis-knowledge-attitudes-and-expectations-amongst-nz-health-care-professionals-and-their-patients\/\">link on our website<\/a>.<\/li>\n<\/ul>\n<p>Finally, do remember the CLL forum we are having online and live at LBC headquarters on 14 October, 5.30 \u2013 7.00pm. Invitations and details will be coming out shortly.<\/p>\n<p>Best wishes<\/p>\n<p>Neil Graham[\/vc_column_text][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>Welcome to issue 3 of the CLL Advocates newsletter. This month&#8217;s newsletter focuses on research and our initiatives underway in this area.<\/p>\n","protected":false},"author":1,"featured_media":1944,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[12,17,21],"tags":[],"class_list":["post-14677","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news-media","category-featured","category-newsletter"],"jetpack_featured_media_url":"https:\/\/clladvocates.nz\/wp-content\/uploads\/2020\/06\/CLLANZ-Favicon.jpg","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/clladvocates.nz\/index.php?rest_route=\/wp\/v2\/posts\/14677","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/clladvocates.nz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/clladvocates.nz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/clladvocates.nz\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/clladvocates.nz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=14677"}],"version-history":[{"count":3,"href":"https:\/\/clladvocates.nz\/index.php?rest_route=\/wp\/v2\/posts\/14677\/revisions"}],"predecessor-version":[{"id":14685,"href":"https:\/\/clladvocates.nz\/index.php?rest_route=\/wp\/v2\/posts\/14677\/revisions\/14685"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/clladvocates.nz\/index.php?rest_route=\/wp\/v2\/media\/1944"}],"wp:attachment":[{"href":"https:\/\/clladvocates.nz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=14677"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/clladvocates.nz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=14677"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/clladvocates.nz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=14677"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}