MULTIPLE MYELOMA MEDIA RELEASE<\/p>\n
<\/p>\n
FOR IMMEDIATE RELEASE<\/p>\n
28 April 2022<\/p>\n
CANCER AGENCY REPORT DUPLICATES PHARMAC ROLE<\/p>\n
The Cancer Control Agency\u2019s analysis of the gap between Australia and New Zealand in funding 18 selected medicines with substantial clinical benefit is a welcome way of drawing attention to the plight of NZ cancer patients desperate for treatments that are funded across the Tasman, but not here, says Myeloma NZ Chief Executive Dr Ken Romeril.<\/p>\n
\u201cIt\u2019s good to see the Agency weighing in on this issue, but their findings are not news to anyone involved in cancer treatment, and this kind of analysis is surely part of Pharmac\u2019s job in evaluating medicines.<\/p>\n
Dr Romeril said the release of the report raises a number of important questions:<\/p>\n
Dr Romeril said the most important question is what this report might mean for those NZ cancer patients who right now are struggling with desperate and severe unmet need for treatment.<\/p>\n
\u201cIn that regard a further concern I have about this report is that it reinforces the idea that there are only two types of treatment: curative and life-extending. \u00a0That is a crude distinction and sows the idea that funding a medicine that extends life by a short time is not worthwhile.<\/p>\n
\u201cIn fact many cancers have been cured in our lifetime. And for a number of cancers there are cures on the horizon, with life-extending treatments often becoming the bridge that keeps the patient alive and well until the next breakthrough or the cure has arrived.<\/p>\n
\u201cApproaches to treating multiple myeloma are a good example of this point. Transformative, life-extending treatments have been available and funded throughout the Western world for several years. And a cure is in fact in sight. But in NZ myeloma is one of the most neglected areas in terms of access to new treatments, with no new treatments having been funded for in NZ for the past 7 years\u201d, said Dr Romeril.<\/p>\n
Myeloma patient and young mother Nichola Oakenfull says seeing the Agency\u2019s report just highlights the pain of her predicament.<\/p>\n
\u201cIt\u2019s pretty demoralising as a patient to read the report talking about curative and non-curative cancers. It feels like we are cast aside because there is no cure for us.<\/p>\n
\u201cThere\u2019s no cure for diabetes. But we accept the cost of continuing to treat diabetics as the right thing to do. Should we decide not to treat them because they are going to die anyway?<\/p>\n
\u201cOverseas, people with my cancer are living long and productive lives because they have access to drugs that manage their cancer for long periods, and when one drug stops working they move to the next option. Here in New Zealand we only have two lines of treatment for transplant eligible patients, and then it\u2019s game over.<\/p>\n
\u201cAs shown in the report, Australia has carfilzomib, daratumumab and pomalidomide funded for myeloma, while these three are not funded in New Zealand at all.\u00a0 These are not fancy, new, unproven drugs. They are standard of care overseas. People are shocked when I mention in international groups that we don\u2019t have these medicines here in NZ.<\/p>\n
\u201cThe Malaghan Institute in Wellington is doing amazing work with CAR T-cell trials.\u00a0 I want to be around for when they start using them for myeloma patients.<\/p>\n
\u201cI have an eight year old son I need to stay alive for, but I potentially won\u2019t with the currently approved drugs.\u00a0 Knowing that it could all be so different if I lived across the Tasman is honestly heart-breaking, and so unfair\u201d, said Ms Oakenfull.<\/p>\n
Dr Romeril said Myeloma NZ was disappointed that blood cancers had not been included in the report, but noted that the Agency intended to produce a separate report on these.<\/p>\n
\u201cWe will look forward to that with great interest,\u201d said Dr Romeril.<\/p>\n
<\/p>\n
ENDS<\/p>\n
For further information:<\/p>\n
Dr Ken Romeril<\/p>\n
Chief Executive, Myeloma NZ<\/p>\n
0274 432 624<\/p>\n
ken.romeril@icloud.com<\/a><\/p>\n <\/p>\n Nichola Oakenfull<\/p>\n Patient, and Trustee, Myeloma NZ<\/p>\n 027 454 9682<\/p>\n