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FDA Clears clonoSEQ to Detect MRD in Chronic Lymphocytic Leukemia

ClonoSEQ, from Adaptive Biotechnologies, can detect 1 cancer cell among a million healthy cells.

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Experts Outline Best Practices in the Treatment of Chronic Lymphocytic Leukemia

Chronic lymphocytic leukemia (CLL) is a cancer of the blood and bone marrow that can be treated to…

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Experts Discuss Treatment Advances for Chronic Lymphocytic Leukemia

CLL is a rare cancer of the blood and bone marrow, and although it is difficult to treat many…

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CLL Advocates NZ Newsletter Issue 2

Welcome to our first CLL Advocates newsletter. Like many organisations, we weren’t able to…

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CLLANZ calls for home-based treatment for CLL patients during COVID pandemic

We’ve been concerned about the current COVID-related risks to CLL patients who may be delaying treatment in order to avoid hospital-based infusions, therapies and monitoring, and lab tests. So, last week CLL Advocates New Zealand wrote to Pharmac requesting them to provide temporary access to ibrutininb (taken in tablet form at home) for del17p and RR patients, and for newly diagnosed fit and unfit patients.

READ THE LETTER

Welcome to CLL Advocates NZ

My name is Neil Graham and I’m one of around 2000 New Zealanders living with CLL. I had a near death experience around 5 years ago. My life was saved by one of the extraordinary new treatments that are now available for CLL but which is not funded in New Zealand. You can read my story here.

I believe all life is precious, and I want others in the position I was in to have the chance to go on living. So I’ve set up this advocacy group to push for a mechanism to fund the therapy that saved my life and other innovative CLL medicines that are coming onstream.

This is going to be a straight-talking, no-frills organisation, and we want to complement the work of other organisations rather than duplicating the information and services they provide.

So I warmly invite you to subscribe to our website and join our private Facebook group where patients and their families can share stories and ideas. If you have suggestions on what we should be doing, or want to put questions to experts, or would like to write your own story for us to post on our Patients’ Stories page, we would welcome that. And if you’d like to get in touch see my contact details on this site. I hope that together we can make a difference.

Thanks!

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