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Newsletter #13: Submission to Panel Reviewing Pharmac

Our major activity over the past month has been engaging with the independent Panel set up by the…

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Covid-19 Vaccines May Not Produce Sufficient Antibody Response in Transplant Recipients

When clinical trials were conducted to determine the immunogenicity — the ability to elicit an…

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CLL Advocates Newsletter Issue 12

Covid-19 and CLL prevention and treatment - an update.

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Is there a link between CLL and stomach pain?

People with CLL may experience discomfort, swelling, and pain in the abdomen if their spleen…

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CLL Advocates NZ is pleased to announce the official launch of its patient booklet, CLL – A Guide for Patients in New Zealand. It has been made available in both a digital download and as a hardcopy booklet. Click below to download, request a hardcopy and to learn more.

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Welcome to CLL Advocates NZ

My name is Neil Graham and I’m one of around 2000 New Zealanders living with CLL. I had a near death experience around 5 years ago. My life was saved by one of the extraordinary new treatments that are now available for CLL but which is not funded in New Zealand. You can read my story here.

I believe all life is precious, and I want others in the position I was in to have the chance to go on living. So I’ve set up this advocacy group to push for a mechanism to fund the therapy that saved my life and other innovative CLL medicines that are coming onstream.

This is going to be a straight-talking, no-frills organisation, and we want to complement the work of other organisations rather than duplicating the information and services they provide.

So I warmly invite you to subscribe to our website and join our private Facebook group where patients and their families can share stories and ideas. If you have suggestions on what we should be doing, or want to put questions to experts, or would like to write your own story for us to post on our Patients’ Stories page, we would welcome that. And if you’d like to get in touch see my contact details on this site. I hope that together we can make a difference.

Thanks!

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