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Tool appears to predict need for treatment in asymptomatic, early-stage CLL

A novel prognostic tool appeared to predict the need for treatment among patients with…

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Changes in Management of CLL Due to COVID-19 Noted in Italy

The management of CLL, including delays in work-up and treatment, and modifications to clinical…

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Specialty Pharmacists Have Broad Responsibilities in Chronic Lymphocytic Leukemia

AT JUST 1.2%, chronic lymphocytic leukemia (CLL) represents a small percentage of all new cancer…

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Discontinuation of Venetoclax Impacts Outcomes of Rituximab Combination in CLL

In an interview with Targeted Oncology, Anthony Mato, MD, discussed the findings of venetoclax…

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CLLANZ calls for home-based treatment for CLL patients during COVID pandemic

We’ve been concerned about the current COVID-related risks to CLL patients who may be delaying treatment in order to avoid hospital-based infusions, therapies and monitoring, and lab tests. So, last week CLL Advocates New Zealand wrote to Pharmac requesting them to provide temporary access to ibrutininb (taken in tablet form at home) for del17p and RR patients, and for newly diagnosed fit and unfit patients.

READ THE LETTER

Welcome to CLL Advocates NZ

My name is Neil Graham and I’m one of around 2000 New Zealanders living with CLL. I had a near death experience around 5 years ago. My life was saved by one of the extraordinary new treatments that are now available for CLL but which is not funded in New Zealand. You can read my story here.

I believe all life is precious, and I want others in the position I was in to have the chance to go on living. So I’ve set up this advocacy group to push for a mechanism to fund the therapy that saved my life and other innovative CLL medicines that are coming onstream.

This is going to be a straight-talking, no-frills organisation, and we want to complement the work of other organisations rather than duplicating the information and services they provide.

So I warmly invite you to subscribe to our website and join our private Facebook group where patients and their families can share stories and ideas. If you have suggestions on what we should be doing, or want to put questions to experts, or would like to write your own story for us to post on our Patients’ Stories page, we would welcome that. And if you’d like to get in touch see my contact details on this site. I hope that together we can make a difference.

Thanks!

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