Videos: patients and experts

What is the state-of-the-art treatment for CLL in New Zealand?

What are the latest international and local developments in CLL research and treatment, and what’s on the horizon? What is the optimal approach to ‘watch and wait’ management? How can we access clinical trials? How does New Zealand compare with international standards of care?

For answers to these questions and more, join us in person or online for the CLL Advocates NZ Inaugural CLL Seminar, featuring three of NZ’s top haematologists and CLL specialists Dr Rob Weinkove, Dr Peter Browett and Dr Gillian Corbett.

14 October 2020


Changing CLL Treatment Landscape: Updates From an Expert

What new therapies are in the pipeline for chronic lymphocytic leukemia (CLL)? What is the side effect profile for novel agents? CLL specialist and dedicated researcher Dr. Nicole Lamanna, from Columbia University Medical Center, shares insight on the latest treatment developments and progress in clinical trials. With a hopeful outlook, Dr. Lamanna describes new therapies under investigation, recent drug approvals and how to sequence novel agents to reduce toxicities. Watch now to hear expert updates on CLL therapy.

Published by Patient Power – 12 August 2019

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Accessing State-of-the-Art CLL Care: What’s Right for You?

The afternoon portion of our recent chronic lymphocytic leukemia (CLL) Town Meeting in Cincinnati, Ohio features CLL patients John Binz and Dave Kasanicky and care partner Lynnda Kasanicky discussing the impact of living and raising a family with a chronic cancer. This program also contains Q&A session with a dynamic panel of experts, including blood cancer specialist Dr. Edward Faber, community oncologist Dr. Mark Marinella, nurse navigator Amy Sheldrick, nurse practitioner Lisa Ovesen and financial navigatorAlison Mulholland. Watch now to learn their perspectives about living with CLL.

Published by Patient Power – 5 August 2019

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Getting the Right CLL Care Team for You: Advice From Survivors

How can chronic lymphocytic leukemia (CLL) patients choose the right provider? Why is it important to see a specialist? Patient advocates James Miller and Carol Preston share advice for others seeking a knowledgeable, confidence-building healthcare team to treat their CLL. Watch now to learn more.

Published by Patient Power – 25 July 2019

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Relapsed CLL After Targeted Therapy: What are My Options?

What is the next appropriate treatment for patients whose chronic lymphocytic leukemia (CLL) comes back after using a targeted therapy? Watch now to hear CLL expert Dr. Nitin Jain, from The University of Texas MD Anderson Cancer Center, discuss suitable agents for relapsed CLL patients.

Published by Patient Power – 23 July 2019

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Cancer Dietitian Explains What to Eat During and After Treatment

Unsure of what to eat during or after treatment? Tune in to hear Julie Lanford, also known as “The Cancer Dietitian,” answer common questions on diet, nutrition and cancer from the Patient Power community.

Published by Patient Power – 15 July 2019

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CLL Disease Monitoring: Coping With the Fear of Relapse

How can chronic lymphocytic leukemia (CLL) patients cope with uncertainty and the fear of relapse? Listen in as patient advocate Carol Preston explains how she compartmentalizes living with two cancers, pushes through and stays hopeful.

Published by Patient Power – 10 July 2019

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Mental and Emotional Health: Where Can CLL Patients Draw Support From?

During this Patient Café segment, a panel of people living with chronic lymphocytic leukemia (CLL), including Patient Power founder Andrew Schorr, Maggie Buckenmayer and Adrian Warnock, talk about treatment, family life and who they lean on for support. Patient Power co-founder and care partner Esther Schorr also shares ways to be actively involved in a loved ones’ care and provide support.

Published by Patient Power – 5 July 2019

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Finding A Healthy Balance: Tools for Managing CLL-Related Stress

This Partners program features a dynamic panel of chronic lymphocytic leukemia (CLL) patients and mental health professionals discussing the effects of stress on people living with CLL. Can stress affect CLL growth? The panel walks through a variety of stressors brought on by the disease and treatment, and the impact of stress on a person’s well-being and cancer risk. How can patients learn to cope? The panel also provides expert and patient perspectives on stress management techniques.

Published by Patient Power – 3 July 2019

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CLL Patient Story: Living with Watch & Wait, Preparing for Treatment

Meet chronic lymphocytic leukemia (CLL) patient Maggie Buckenmayer as she shares her story receiving an unexpected cancer diagnosis and how she’s preparing mentally and emotionally for treatment as she continues in the watch-and-wait phase.

Published by Patient Power – 20 June 2019

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CAR-T Cell Therapy for CLL: Where We are Now and Where Research is Headed

Is CAR-T cell therapy the “next big wave” in immunotherapy for chronic lymphocytic leukemia (CLL)? Leading CLL expert Dr. David Maloney, from Seattle Cancer Care Alliance, shares findings from recent clinical trials and gives an encouraging, in-depth research update on CAR-T cell therapy for CLL. How are CLL patients responding? Watch now to find out.

Published by Patient Power – 30 April 2019

For more info and to view the transcript click here