CLL Advocates Webinar 1st September 7.00pm
CLL Advocates Webinar
Please register in advance for the webinar: CLL Advocates webinar 1st Sept 7pm
After registering, you will receive a confirmation email containing information about joining the meeting.
Dr Amy Holmes, Medical Advisor to CLL Advocates NZ and Dr Ruth Spearing, Trustee of CLL Advocates NZ will lead this discussion from 7pm this Sunday, September 1st.
A/Professor Mary Ann Anderson, a highly respected CLL expert from the Peter Mac, the Royal Melbourne and the WEHI research Institute has kindly prepared a pre-recorded talk for CLL Advocates NZ to mark International CLL Day which is this Sunday 1st September.
The talk is excellent but contains a lot of data, so we thought it would be beneficial for everyone to review it at their own pace this week and then use the Webinar to address any questions that arise.
If you would like to view the recording of Mary-Ann’s talk, either register for the Webinar and the link for Mary-Ann’s video will be sent automatically to you, or please email: clladvocates@outlook.co.nz to request the link.
We look forward to seeing you online!
David Seymour's ‘whole of society’ plan for tipping millions of dollars more in to Pharmac - and Big Pharma
David Seymour, ACT leader and the minister in charge of Pharmac, is advocating for a significant transformation of Pharmac’s funding model. He proposes a “whole of society” approach, which assesses the broader societal impacts of funding or not funding medicines, rather than just their upfront costs. This model aims to justify increased government spending on pharmaceuticals by demonstrating potential savings in other areas, such as healthcare and welfare.
Read more here: David Seymour - Pharmac and big Pharma
Expressions of Interest for CLL Advocates positions
These are exciting times for our CLL community as the 'patient voice' becomes an essential factor in determining which drugs receive funding here in New Zealand. We are currently seeking at least one more patient trustee to join our team. While the time commitment is minimal, a strong passion for our cause is highly valued.
At our recent CLL Advocates Trustees meeting, we decided to establish a patient working group, which Diane Ward, a CLL Advocates Trustee, is enthusiastic to lead. This initiative aims to enhance patient input in our advocacy efforts.
World CLL Day is on September 1, a day that holds significant meaning for all of us. We need your support to spread these important messages to as wide an audience as possible. If you are interested in becoming a trustee or a member of the working group, please complete the form below and submit it by 10th August 2024.
Expressions of Interest for CLL Advocates positions
More blood cancer drugs move falls short, says Dr Rodger Tiedemann
Close to 4000 people with blood cancer and blood-related disorders are expected to benefit from a move to buy more medicines, but a haematologist says New Zealanders will continue to die early until more modern medicines are funded.
Dr Rodger Tiedemann said the announcement reflected "one small step for patients, one giant deal for Pharmac,".
Read more here: here
New medicine funding something to celebrate - but there’s a long way to go
Rodger Tiedemann, an associate professor of medicine at the University of Auckland and a consultant haematologist with Auckland Hospital’s cancer and blood service, highlights the critical underinvestment in modern medicines in New Zealand.
He commends the coalition Government's recent pledge to allocate $642 million over the next four years for new cancer treatments and non-cancer medicines, which is expected to benefit thousands of New Zealanders.
However, he underscores that despite this investment, New Zealand remains significantly behind other OECD countries in medicine reimbursement, reflecting chronic underfunding. This gap has led to limited access to life-extending and curative treatments, necessitating further substantial investment to bring the country's healthcare up to par with global standards.
Read the full article here
Government U-turn: Coalition mends broken promise with 54 new drugs funded
In a major U-turn, the Coalition Government has announced it will not only fulfil its promise of funding 13 cancer drugs but extend the funding to an additional 41 medicines.
However, not all of the treatments will be available as soon as cancer patients hoped.
Health Minister Dr Shane Reti and Associate Health Minister David Seymour announced on Monday the Government will spend $604 million to fund 54 new medicines - made up of 26 cancer drugs and 28 other treatments.
"Today we are delivering on the therapies we promised and more, with an unprecedented and transformative investment in cancer and other treatments," Dr Reti said.
"This will be a mix of new medicines and widened access to medicines that are already available."
The additional cancer treatments announced today have not been named, however, the Government said it includes medicines for blood cancers and other tumours. The other treatments could cover infections, respiratory conditions, osteoporosis, sexual health, dermatology, inflammatory conditions, and mental health.
Read the full article here
Open Letter to Prime Minister
In August last year, a promise was made to fund 13 new cancer medicines via a $280 million fund to Pharmac, starting July 1 this year.
These medicines, crucial for treating cancers such as lung, bowel, kidney, melanoma, and head and neck cancers, are already available in Australia. However, the recent budget announcement has left cancer patients and advocates in disbelief, as it appears these medicines may not be funded for at least another year.
Read the Letter to Prime Minister Chistopher Luxon, Minister of Finance Nicola Willis, and the Associate Minister of Health (Pharmac) David Seymour here: Open Letter
Valuing Life - New Zealand Medicine Access Summit
Diane Ward, a dedicated advocate and trustee for CLL Advocates, and Catherine Isaac our CLL chair, attended the prestigious Valuing Life Summit at Parliament’s Grand Hall. This event marked a significant milestone in healthcare collaboration in New Zealand.
To delve deeper into their insights and experiences at the summit, you can explore Diane's comprehensive summary here: Valuing Life Summary