CLL Advocates June Newsletter
Dear Friends of CLL Advocates
We have a lot to report on and a lot to get on with!
CLL Focus groups
We’re pleased to share an overview of key findings from the CLL patient focus group discussions we held in December 2022 (Focus Groups Research – CLL Advocates NZ)
It highlights the major themes and issues that emerged from the research and sets out priority areas of focus for CLLANZ. Get in touch if you’d like to help with these! Meanwhile we’re working with the facilitator of the focus groups to follow up on her recommendation that we survey a wider group of patients and carers.
Local support groups for CLL patients
Another action arising from the focus groups is the need for local support groups.
Are you interested in joining or starting one in your region?
Please contact Diane Ward: dianew564@gmail.com to find out more about this initiative.
The FixRx Buyers Club
We’re currently checking out this buyers’ club that helps patients across the world access authentic medications at affordable cost. If you have any experience of this or are interested in the concept let us know: FixRx Buyers Club
‘Fabulous ladies in the same boat’
Read this great story about three women who met online through being in the same boat – living with CLL. Despite different ages and lives, the three have supported each and become great friends while sharing and navigating the challenges of CLL: Fabulous ladies in the same boat
CLL Advocates Give a Little page
Please help support our mission. No matter how small, your donation will help us advocate for better treatments for CLL and improve the lives of those living with this disease.
Thanks to those who’ve already made donations: CLL Advocates Give a Little Page
Frequently asked questions
A recent update to the “About CLL” section on the webpage includes section that answers common questions about CLL: Frequently asked questions
It also includes a list of questions patients can ask their doctors to better understand their diagnosis and treatment options. Questions for your doctor
Please send any feedback to trustees@clladvocates.org
Best wishes
The Trustees
CLL Advocates NZ