WATCH - Blood Cancer Patient Forum 2021
Blood Cancer Patient Forum 2021
UPDATE
The 2021 Blood Cancer Patient Forum. held virtually, is now available to view online.
You can view the playlist below and on Youtube here
Dear all,
Tomorrow was to be the 2021 Blood Cancer Patient Forum held in Christchurch. This conference has an excellent programme, which is now all virtual. It is such a pity that it won’t be held live in Christchurch, because of lockdown.
The speakers all will be very good, and for those struggling with lockdown, it will give you an informative and structured event for your weekend.
Look through the details of the speakers on LBC’s website. You will all have a slightly different slant on what might interest you, but there is lots to recommend.
- Jake Bailey is a full-time speaker and blood cancer survivor. His talk is not to be missed.
- Likewise, David Downs, comedian and author, also a blood cancer survivor, the story behind which he documents in a very funny and thoughtful book “A Mild Touch of the Cancer” is a speaker whose talk is also not to be missed.
The formal medical speakers’ topics of the conference are diverse and informative.
- Professor Peter Browett will talk about chronic leukaemias, and genetics
- Dr Henry Chan about myeloma
- Dr Richard Dooley will talk about state of the art blood cancer and leukaemia treatments, and, very important and potentially lifesaving, how to access the unfunded ones
- Dr Kathryn Forwood will talk about palliative care in haematology
- Dr Amy Holmes will give an update on NHL, and Dr Graeme Kidd will address living with blood cancer.
- Georgina Barr will talk about feet, two parts of our body we don’t tend to look after like we should, until they start to hurt or don’t work as they should
- And there are several excellent talks about the psychosocial and palliative aspects of having leukaemia or blood cancer – by Sue Corkill, Michael Hempseed, Erin Kavanagh, and Elaine Horn.
This will be a valuable and informative event not to be missed. It starts on Friday evening and goes all day Saturday, where there will be sessions in parallel, so you will need to give some thought to what sessions you wish to go to, and so plan ahead. View the programme here.
Enjoy it.
Neil Graham
Webinar: The current CLL treatment landscape and advocating for your care
The Current CLL Treatment Landscape and Advocating for Your Care
Overview
Join us for a virtual town hall meeting for chronic lymphocytic leukemia (CLL) patients and family members on Saturday, March 20, 2021 starting at 10 am CT/11 am ET. – 5am, Sunday 11 March NZST
This 3-hour program will take you through the current treatment landscape of CLL, including the latest news in research, state-of-the-art testing and personalized care. Our speakers will offer advice on advocating for the best of care, staying informed and playing an active role in your treatment journey. Join our hosts Carol Preston, Andrew Schorr and Michele Nadeem-Baker for this informative session on living with CLL. Our special guests include Shuo Ma, MD, PhD, and Nurse Practitioner Jennifer Boyer, MSN APRN NP-C, of the Robert H. Lurie Comprehensive Cancer Center of Northwestern University, as well as Deborah M. Stephens, DO, of the Huntsman Cancer Institute at University of Utah and Jane Dabney, LISW-S, OSW-C, Senior Oncology Social Worker at Cleveland Clinic.
Agenda
10:00-10:30 am CT – Introduction: Information for those who are newly diagnosed or beginning their treatment journey. Learn about the stages of CLL and questions to ask your doctor.
10:30-10:45 am CT – CLL and COVID-19: What should patients know about the COVID vaccine? Is it safe to start or resume treatment right now? Get the latest updates on COVID-19.
10:45-11:30 am CT – The Treatment Landscape: Learn about the current CLL treatment landscape, including the latest news in research, state-of-the-art testing and options for personalized care.
11:30-11:45 am CT – Break
11:45-12:30 pm CT – Being Your Own Advocate: Experts and patient guests discuss how patients and care partners can advocate for the best of care, stay informed, and play a more active role in their treatment.
12:30-1:00 pm CT – Q&A
Send us your questions: cll@patientpower.info
Learn more here and register to attend
ASH 2020 CLL Daily Wrap-Up
ASH 2020 CLL Daily Wrap-Up
This article was originally published on Patient Power
Overview
Join Patient Power on Tuesday, December 8th at 4pm PT/7pm ET for a live recap of the latest chronic lymphocytic leukemia (CLL) news from the 62nd American Society of Hematology (ASH) Annual Meeting. ASH is the world’s most comprehensive hematology event of the year where experts review thousands of scientific abstracts, highlighting updates on the most critical topics in hematology. Some of the field’s top doctors will share their thoughts on emerging research, clinical trials, and how current events such as COVID-19 are impacting cancer patients. Attend live to hear exciting CLL news from ASH 2020!
This program is sponsored by Pharmacyclics. This organization has no editorial control. It is produced by Patient Power. Patient Power is solely responsible for program content.
The CLLANZ Inaugural CLL Seminar
CLLANZ Inaugural Patient Seminar
What is the state-of-the-art treatment for CLL in New Zealand?
What are the latest international and local developments in CLL research and treatment, and what’s on the horizon? What is the optimal approach to ‘watch and wait’ management? How can we access clinical trials? How does New Zealand compare with international standards of care?
For answers to these questions and more, join us in person or online for the CLL Advocates NZ Inaugural CLL Seminar, featuring three of NZ’s top haematologists and CLL specialists Dr Rob Weinkove, Dr Peter Browett and Dr Gillian Corbett.
The format will be short presentations from each speaker followed by a panel discussion and Q&A. Attendees can send in questions in advance of the meeting or ask them in person either at the event or through the Q&A chat window on the live stream of the seminar. Questions you’d like to submit in advance can be emailed to TimM@leukaemia.org.nz
The event is co-hosted by Leukaemia & Blood Cancer New Zealand with three options to attend.
You can attend in person at LBC’s main office in Auckland, at your local LBC support centre (via Zoom live stream), or from the comfort of your home via Zoom live stream. See details below.
Patients and their supporters are welcome to attend. Please register for one of the following.
Presentations
CLL – Biology, genetics, prognosis
Peter Browett
Management of CLL in New Zealand
Gillian Corbett
CLL in New Zealand:Future directions & priorities
Dr Robert Weinkove
Options to attend
Attend in person in Auckland at the live event
5.15pm – 7pm: 6 Claude Road, Epsom, Auckland
Register by phoning Tim Maifeleni on 0800 15 10 15 Extn 9217 or emailing TimM@leukaemia.org.nz by 7 October
Attend in person at your local LBC support centre
Live event will be screened via Zoom from 5.30pm
Register by calling your local support coordinator on 0800 15 10 15 or email info@leukaemia.org.nz by 7 October
From home (Via Zoom)
Live video from 5.30pm
Register to join the live Zoom meeting here
After you register you will receive a confirmation email
Download event poster
All event details and how to register are available in this poster. Click the image to download or view a PDF.
4 October - CLL Treatments Today: What Should I Know?
Online webinar: CLL Treatments Today: What Should I Know?
Virtual town meeting - 4 October 5am (NZST)
Overview
Join this virtual town meeting for chronic lymphocytic leukemia (CLL) patients and family members on Saturday, October 3, 2020 starting at 9 am PT/12 pm ET. This 3-hour program will take you through a CLL 101, 201 and 301 class hosted by CLL patient advocates and experts from Cleveland Clinic and University Hospitals Cleveland Medical Center. All attendees will receive a special Powerful Patient face mask.
We want you to be part of this event! Send us your best selfie, or a picture of you with your family, or a pet –anything that tells us who you are! You might just see it on the screen! Please send it to cll@patientpower.info. By sending it to us, you consent to its use in the CLL town hall recorded content and live stream.
Agenda
12:00-12:30 pm ET- CLL 101 – Information for the newly diagnosed. Learn about the stages of CLL, how to talk to your friends and family, and what to ask your doctor.
12:30-12:45 pm ET- CLL and COVID-19 – Is it safe to start or resume treatment right now? Find out how the coronavirus pandemic is impacting CLL patients.
12:45- 1:30 pm ET- CLL 201 – Learn about the current CLL landscape, including treatment options, side effects and the significance of minimal residual disease (MRD) testing.
1:30-1:45 pm ET – Break
1:45 -2:30 pm ET- CLL 301 – Experts discuss the future of CLL treatment, including FDA approvals, clinical trials and Richter’s Transformation.
2:30-3 pm ET – Q&A
Online webinar: Telling Others About My CLL Diagnosis
Online webinar: Telling Others About My CLL Diagnosis
How do you tell family and friends that you have leukemia? Chronic Lymphocytic Leukemia (CLL) patients often don’t “look sick” so it may be hard for your family, friends and co-workers to know what you are going through. How do you help others understand your condition?
Join us for our next CLL Answers Now program on Wednesday, September 16th at 10:30 am PT/1:30 pm ET as host and CLL patient Michele Nadeem-Baker discusses with social worker Robin Katz from Lurie Cancer Center of Northwestern University communication tips for people living with CLL, and the best way to share details of their condition. They will also discuss how to talk to their loved ones about their diagnosis and give advice to people newly diagnosed.
Send your questions in ahead to cll@patientpower.info.
Wednesday, September 16, 2020 at 10:30 AM Pacific Time (US and Canada)
World Leukemia Day - 4 September 2020
World Leukemia Day - 4 September 2020
World Leukemia Day is on September 4th and we’d love you to join us.
We are looking for people from all around the globe to participate in increasing the awareness of leukemia that is so vital to help improve the lives of patients after diagnosis.
Here are 3 ways to get involved:
1. Share your leukemia story
Encourage others to share their leukemia story on social media and use the hashtags #WLD2020 or #WorldLeukemiaDay. More information is available at www.worldleukemiaday.org
2. Share your ‘spotty selfie’
Dig out your spotty clothes and share your ‘spotty selfie’ on social media with the hashtag #WLD20 on September 4th to show your support.
3. Spread the word
Help raise awareness of the symptoms of leukemia by using our social media graphics and sharing these across your social media platforms along with the hashtags #WLD20 #worldleukemiaday.
You can download all the social media graphics here > https://bit.ly/WorldLeukemiaDay
World Leukemia Day isn’t just about raising awareness, it’s also about education and learning how to spot the signs and symptoms. For some types of leukemia early diagnosis is crucial, if you are experiencing any of the symptoms, speak to a healthcare professional about your concerns.
Find out more about the signs and symptoms here > https://www.worldleukemiaday.org/what-is-leukemia
We look forward to seeing your ‘spotty selfies’ on September 4th.
Your CLL Advocates Network
Online webinar: Aggressive CLL Treatment Options: Are They Right for Me?
Online webinar: Aggressive CLL Treatment Options: Are They Right for Me?
How do experts decide when a CLL patient needs more aggressive treatments? In the age of oral therapy, when do CLL treatments such as CAR-T therapy and clinical trials make sense? Join us on Thursday, August 27th at 1 pm PT/4 pm ET for a live CLL Answers Now Program. Host Andrew Schorr will talk with University of Rochester Wilmot Cancer Center’s Dr. Paul Barr on these more aggressive treatment options for CLL. Please send questions in advance to cll@patientpower.info.
Thursday, August 27, 2020 at 1:00 PM Pacific Time (US and Canada)
CLLANZ will publish the link after the event has ended or you can register here